BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Lexington Observer - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Lexington Observer
X-ORIGINAL-URL:https://lexobserver.org
X-WR-CALDESC:Events for The Lexington Observer
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240714T090000
DTEND;TZID=America/New_York:20240714T123000
DTSTAMP:20260410T122451
CREATED:20240719T070258Z
LAST-MODIFIED:20240719T070258Z
UID:24179-1720947600-1720960200@lexobserver.org
SUMMARY:BOSTON’S FRIEDREICH ATAXIA (FA) COMMUNITY TO BIKE ALONG BATTLEFIELDS OF THE REVOLUTIONARY WAR TO RAISE AWARENESS AND CRUCIAL FUNDS FOR RARE\, GENETIC AND LIFE SHORTENING DISEASE; Friedreich’s Ataxia Research Alliance (FARA) aims to raise $1+ million in 2024 for FA research
DESCRIPTION:Kyle Bryant and Alex Fielding will join Biogen employees and the larger FA community in the 2024 rideATAXIA Hometown Boston bike ride benefitting FA research. \nBryant founded rideATAXIA in 2007 and it quickly evolved from a small family fundraiser to a nationwide movement of cycling events across the U.S. to support the urgent pace of research to treat and cure FA. \nBryant has participated in many awe-inspiring endurance rides – including a 3\,000-mile non-stop race from California to Maryland which became the subject of an award-winning documentary (“The Ataxian”) – and just returned from the Himalayas where he and the rideATAXIA cycling team scaled the highest paved road in the world. Bryant is also co-host of the “Two Disabled Dudes” podcast and author of “Shifting Into High Gear” which chronicles his experiences\, challenges\, and triumphs living with FA. \nBryant and Fielding can discuss their personal experiences with FA and how events like rideATAXIA support the mission to promote widespread awareness of and drive research funding. Biogen executives can speak to the company’s support of the FA community and efforts to address a significant unmet need by bringing the first FDA-approved treatment to people living with FA. \nTO SET UP INTERVIEWS\, CONTACT: LINDSEY.BAILYS@GCIHEALTH.COM
URL:https://lexobserver.org/event/bostons-friedreich-ataxia-fa-community-to-bike-along-battlefields-of-the-revolutionary-war-to-raise-awareness-and-crucial-funds-for-rare-genetic-and-life-shortening-disease-friedreich/
LOCATION:1875 Massachusetts Ave\, Lexington\, MA 02420\, 1875 Massachusetts Ave\, Lexington\, MA\, 02420\, United States
END:VEVENT
END:VCALENDAR